Cleaning up after a child's toileting mishaps is one of the most disgusting and aggravating tasks for any parent. For many parents of children with special needs, the situations they face range from cleaning a few wet pants now and then, to repairing walls and furniture destroyed by smeared feces and sprayed urine. For some children with developmental disabilities, it just takes a longer time than their typical peers, but eventually, they learn to stay dry.
However, for some other children, there is no finish line. The marathon never ends. Toddler training pants make way for big kid bed wetting pants, then adult diapers. Caregivers pick up increasingly heavy children who become young adults who mess themselves around the clock. There comes a time when parents become unable to handle diapering a large child. Then the anguished dilemma is: who can we trust to take care of our child? How will we know he or she is not abusive? Of course you check references, but the fear eats away at you. To say the least, it can make a parent want to cry and/or scream.
Check with your service coordinator to see how you can get some financial assistance for paying for incontinence products and professional caregivers. If you don't have a service coordinator, check with Parent to Parent of Long Island (Phone: 1-800-559-1729 or 631-434-6196). That organization can direct you to available service coordinators.
Please feel free to comment with suggestions or questions. Thank you for taking the time to read this blog.
National Institute of Health: http://kidney.niddk.nih.gov/kudiseases/pubs/uichildren/
Center for Disease Control: http://www.cdc.gov/family/specialneeds/
Parent to Parent Long Island can lead you to support groups and other resources:http://parenttoparentnys.org/offices/long-island/
Long Island Parent Center: http://www.autismspeaks.org/resource/long-island-parent-center
Autism Speaks Resource Library: http://www.autismspeaks.org/family-services/resource-library/websites-families
Nassau County: http://www.nassaucountyny.gov/agencies/dss/DSSHome.htm
Respite and Caregiver Information:
Tips on finding a caregiver (I have no data or experience with them but they are BBB accredited): http://www.care4hire.com/tips/22-finding-a-caregiver-for-your-special-needs-child/
A web site that helps match families with caregivers (I have no data or experience with them but they are BBB accredited): http://www.care.com/special-needs
North Shore Long Island Jewish: http://www.northshorelij.com/NSLIJ/Support+Services+Available+for+Adults+with+Autism+Spectrum+Diso
Long Island Parent Online: http://liparentonline.com/family_resource_guide_family_support2.html
Incontinence Supplies: (I am not endorsing these products. I have neither data nor experience with these.)
HDIS (a home delivery on line service)http://www.hdis.com/specials/specials.html
Security Products Swim Diaper: http://www.sosecureproducts.com/incontinence-swim-diapers
North Shore (Chicago) Care: http://www.northshorecare.com/pullonsyouth1.html